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Sunday, February 21, 2021
17th birthday letter
Monday, February 8, 2021
The cancer has returned
Dad has a new and seemingly fast-growing tumor very close to where his first tumor was. He will have another surgery in 2 weeks.
At this point, none of us knows what else this entails.
Will there be more chemo and radiation? We don't know.
Since the cancer came back so quickly, are there trials for immunotherapy that he could do? We don't know.
Has the cancer spread beyond just that tumor? We don't know.
When dad went through his first surgery in the late summer/early fall, I did two things.
First, I tried to find humor in suffering because there is humor to be found if only if that humor is absolute absurdity.
Dad's incision cut through the entire right side of his face so when I would call to check up on him I'd ask how Blackbeard was doing. Dad could have easily been a stand-in for one of the pirates on the Jack Sparrow franchise.
He'd had to have his top teeth removed for radiation so I got him a pair of wind-up teeth for Christmas.
The second thing I did was I worried and stewed.
While my antidepressant helps me from completing stopping eating when I am worried, I had little appetite or desire to eat. I fretted about whether the first PET scan would find cancer riddling his body, making further treatments pointless.
I felt such relief when he showed no cancer beyond that one spot on his face.
And now I recognize that me worrying or stewing made not one iota's difference. (Rationally, I know worrying never makes any difference.)
I can actuate zero change in any of this.
For the moment, I'm finding myself feeling very "whatever" about the entire thing. And by "whatever" I don't mean that I don't care; I mean that me fretting or worrying will change absolutely nothing.
I simply feel sad. It devastates me to know my dad is suffering.
I also feel angry at my utter lack of control, at the unfairness for my dad and for thousands and millions of people who are facing such things. I am angry for the Rwandans who faced genocide and the Jews who were forced into camps and the Native Americans who were viciously slaughtered without any "control" over any of it.
I am angry at the human condition. And while some might say this is anger at God, I don't believe in sugar-daddy God who I can turn to for miracles. I don't believe that God makes things happen or that God's ways are beyond our understanding.
If I subscribe to that belief, I am forced to believe that this God is also sadistic.
For my own sanity, it is better for me to believe that nature is cyclical and sometimes there is no reason beyond the simple fact that everything dies. It is here that I have to chuck Christian God out the window and adopt Buddhist impermanence.
(And here is where I can make a shitty joke that God did "open a window," through which I tossed him to make way for Buddhist thought.)
However, I do find myself angry at all the people who might think or say stupid things like "Things happen for a reason" and "Pain has a purpose" and "God never gives you more than you can handle."
Because these are unmitigated lies.
Life regularly gives people more pain than they can handle; they survive because their only other option is to commit suicide.
It is beyond stupid to be angry at the mindset of other people because I know people adopt whatever mindset they need to help them cope just as I am adopting mindsets right now to help me cope.
I am angry at my uselessness to effect anything that will make this go away. It is easier to put a name to my blame.
So when I am able I am reminding myself to simply sit with my anger and my sadness and feel them in all their misery.
Wednesday, February 3, 2021
It is fucking off-season, and I should not be dealing with sports shit
I learned a long time ago, both through teaching and being a mom, that I do not like lots of rules. And this isn't because I don't like rules.
Rules are sometimes necessary.
People don't always act in their own best interests, nor in the best interests of the society.
I simply learned that the more rules you have, the more rules you have to police.
For me, it made more sense to pick the 3 major things I would not tolerate and let that other shit go.
Kids knew I wasn't going to nit-pick them to death; they also knew the hill on which I was willing to fight and die, and as a general rule, they didn't climb that hill with any regularity.
My kids have learned the same.
So when I think back to the 2019 dress code kerfluffle, it may have seemed like I was anti-rule.
While I thought the dress code rules were too strict and did penalize girls and non-cis-gender students, what raised my hackles the most was the utter lack of consistency of the rules. The rule-enforcers were not consistent which was maddening for both students and parents who may have legitimately tried to follow the dress code but then said "fuck it" when the rules weren't actually enforced.
This week, I had to dig into the state high school athletics bylaws to see what the rules are about what coaches can do to and for players during off-season.
Language was used by a certain person who was acting as a mouthpiece for the coach about these off-season activities being "mandatory." This person was more or less telling student athletes to change their winter work schedules in order to have team-building Zoom activities.
And I was pretty certain that if it is off-season, no one can tell any player what to do with his/her time. Not the coach; not the mouthpiece for the coach; not a principal; not a parent.
It occurred to me to ask myself: "Am I playing both sides regarding rules?"
Do I use the rules when they help me/my kid and do I fight against them when they potentially harm me/my kid?
My first answer is yes.
And while that bothers me a little, I have never claimed to be anything other than acutely human.
But I needed to think more about it.
Why would I seek to enforce a rule in one respect and fight against a rule in another respect?
Both involve parents and their children.
Both involve something that can be a hassle to parents and their children.
One rule was inconsistently enforced; the other rule was seemingly not being followed.
I don't believe that life is fair--it is completely unfair that my life has been as privileged as it has been while other people's lives have not been. I don't expect fairness and honestly deserve a lot more unfairness in my life than I actually get.
So I wonder if it was an equity thing regarding who may be penalized?
The dress code rules penalized females and non cis-gender students. It penalized poorer students. It penalized students whose parents couldn't bring them clothes because they can't leave their jobs.
The off-season thing would penalize kids who have made other plans in the off-season, like church or jobs or simply just enjoying a break.
While this exercise in reflection was somewhat enjoyable for me because I like a good stew, it also peeved me to no end that I'm having to check the rules and have phone conversations to say things like, "That is against the rules."
And about fucking sports, of all things.
Tuesday, February 2, 2021
My first COVID shot
My COVID shot experience from yesterday: